I’m a researcher, how can I apply to use your data?
Researchers who intend to use data in our Register only and not link to other datasets can use our anonymised version of the data in our Register. This anonymised data contains a large proportion of all the Register data going back to 1991, with the patient identifiers removed.
If the anonymised Register is not useful for your intended project, or you intend to undertake research linking the Register with another dataset, you’ll need to contact us directly for further information about the process and legal requirements. Unfortunately, due to ongoing work to embed our new Register and data submission system, we are not currently taking applications for data through our Register Research Panel. This will be reviewed in March 2022. Should you wish to contact us with ideas for research or to discuss potential future projects, please email firstname.lastname@example.org.
In accordance with the Human Fertilisation and Embryology (Disclosure of Information for Research Purposes) Regulations 2010, a fee of £5,000 will be charged to cover the cost of extracting data from the Register and preparing the information for disclosure. There may be additional charges to cover any required legal costs.